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A growing scourge of rare genetic diseases and why it matters for India

It is estimated that India has anywhere between 50-100 million people suffering from rare genetic disorders. There are huge gaps in policy, health infrastructure, mental attitudes and diagnostics to be addressed. In addition, tackling rare diseases need changes at a deep-rooted societal level, which are harder to implement and overcome Read more>>

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Report: Status of Rare Diseases

India has one of the largest number of rare disease patients in the world and has recently come with a draft policy on rare diseases. A panel consisting of experts in the rare disease space from India as well as globally renowned experts from academia, industry, patient groups, among others engages in a broad discussion and take stock of the state of rare diseases as well as the one year of the formulation of the Rare Disease Policy in India.

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